White House Author
Marcia Boyle is the president and founder of the Immune Deficiency Foundation (IDF). She has devoted her life to helping people diagnosed with primary immunodeficiency diseases (PI), which are a group of more than 250 rare, chronic disorders, affecting approximately 250,000 Americans, in which part of the body's immune system is missing or functions improperly. Under Marcia’s leadership, IDF developed an electronic personal health record (IDF ePHR) specifically for the PI community that allows patients with these complex disorders to better track and manage their health. Marcia remains a steadfast champion for those living with PI through IDF’s ongoing advocacy, education and research initiatives.