Champions of Change

Champions of Change Blog

  • Connecting Muslims to Coverage

    Khadija Gurnah

    Khadija Gurnah is being honored as an Affordable Care Act Champion of Change.

    There are a number of cultural, language, and financial barriers that prevent the traditional government messaging and resource dissemination strategies from reaching the Muslim community. These barriers vary greatly with each local community, as Muslim Americans represent diverse socioeconomic strata, immigration statuses, cultures, ethnicities, languages, histories, and religious approaches and interpretations. Assistance that is tailored to these diverse needs is critical to any effective public health initiative in the Muslim community.

    American Muslim Health Professionals (AMHP) is a national, non-profit organization of American Muslims in health professions. During the last period of Open Enrollment, our goal was to cater to the needs of the uninsured Muslim population by promoting awareness of the benefits of the Affordable Care Act.

    To achieve this, we had a two-pronged approach to outreach. At a grassroots level, we implemented enrollment campaigns in individual states. At a national level, we served as a resource for information and coordinated National Muslim Enrollment Weekend with a coalition of Muslim organizations.

    At a grassroots level, we recruited “Community Liaisons” in seven states. The liaisons worked with their local faith communities to host enrollment and outreach events. We recognized that our communities needed cultural ambassadors to encourage their local faith communities to host events. Our most effective cultural ambassadors were recent graduates from health fields. They were excited, passionate, and well-established within their communities. AMHP also supported volunteers and partner organizations across the nation by connecting them with local Navigators and providing resources such as event planning guides, outreach materials tailored to Muslim communities, flyers, sign-up sheets, and a Jumah Khutba guide for imams to discuss the Affordable Care Act during sermons.

    We established a clear tracking plan to help us keep metrics on outreach. We sent out a very simple form to anyone who planned to host an enrollment event. We also followed up afterward with another form. The form tracked attendance and enrollment and included a thank you to everyone for their time and commitment. We used the tracking form to update an online events page that allowed people to find enrollment events in their area.

    We were also part of a national coalition of Muslim organizations that facilitated national Muslim Enrollment weekend. Together, we rolled out the first national health campaign targeting the Muslim community. We partnered with amazing facilitators at Get Covered America and the Department of Health and Human Services’ Office of Faith-Based and Neighborhood Partnerships to reach as many Muslim Americans as possible.

    We were met with overwhelming support from the Muslim community. Over the course of the enrollment period, we made contact with 27,116 people and enrolled 1,662 people in high-quality, affordable health insurance plans.

    As we prepare for the next enrollment period, we are looking forward to building upon our existing infrastructure to reach new communities across the nation. It is an honor to be part of this moment in our nation’s history and to help address the needs of our nation’s uninsured.

    Khadija Gurnah is the Program Manager for the American Muslim Health Professionals’ Affordable Care Act outreach and enrollment efforts.

  • Dedicating His Life So Others Could Live Their Own

    Andrew Cray

    Andrew Cray is being honored posthumously as an Affordable Care Act Champion of Change.

    Andrew Cray dedicated his life to making sure others could live their own.  

    Every day, Andrew fought tirelessly for lesbian, gay, bisexual, and transgender, or LGBT, Americans to be treated with dignity and fairness. His work touched so many lives in so many ways, from working to secure protections for LGBT homeless youth to collaborating with the Obama Administration to implement the Supreme Court’s marriage equality rulings. At the center of his work, however, was his belief that the foundation of equality rests on the ability of all Americans to access comprehensive, affordable, and inclusive health care.  

    Andrew was just 28 years old when cancer tragically took his life this past August, but his passion for equity in and access to health insurance existed long before his diagnosis. As a transgender man, Andrew knew the challenges and the needs of the LGBT community personally and was all too familiar with the common occurrence of transgender people being denied insurance simply because of their gender identity, as well as with the startling statistics. According to a recent Center for American Progress report, one in three LGBT people with incomes at or below 4 times the federal poverty line lacked insurance, and 72% of gay, lesbian, and bisexual people reported experiencing discrimination when attempting to find coverage through their employer for a same-sex partner. The eternal optimist that he was, Andrew believed that, with the right reforms and the improvements, those numbers could change.

    Like many LGBT Americans, Andrew saw the Affordable Care Act as a vehicle for change and an opportunity to open up life-saving medical care to a community too often systemically and financially excluded. After passage, he worked with the White House and the Department of Health and Human Services to end discrimination against LGBT people by health insurance companies. He collaborated with the federal government and state governments to ensure accurate data collection on sexual orientation and gender identity, which will serve as the foundation of future LGBT health advocacy. Andrew also worked with various partners to ensure that many of the new insurance options were inclusive of same-sex couples and transgender Americans.

    As important as these reforms are, he also knew that, for the law to work, people needed to be educated and enrolled, which is why he, along with colleagues at the Center for American Progress, Sellers Dorsey, and the Federal Agencies Project, co-founded Out2Enroll. Over the last year, Out2Enroll has helped educate and connect countless LGBT Americans with their new coverage options under the Affordable Care Act. 

    All of this work took on a new meaning for Andrew when, in September 2013, he was diagnosed with cancer. Throughout his treatment, he continued his legal advocacy and outreach work but also decided to utilize his personal story to convince young Americans, including young LGBT Americans, to enroll in health insurance. In an op-ed in The Advocate, Andrew wrote, “Our LGBT community is resilient and strong, and particularly for those of us who are young and have our entire lives in front of us, it may feel like we are invincible. I’ve learned the hard way that I’m not.”

    Several months later, this past July, Andrew found out that his cancer had returned and that it was terminal. As his partner, and soon to be wife, I sat with Andrew as we discussed what he wanted to do with the time he had left. He said he wanted to continue his life’s work: fighting to ensure that all Americans, including LGBT Americans, can access life-saving medical care.

    One month later, Andrew passed away far too quickly and far too young, but the benefits of his work live on. As he wrote in The Advocate last March, “Cancer has taken a lot from me physically and emotionally. But it hasn’t taken away my voice…I want to make sure other young LGBT people understand why getting covered is so important. I hope that my community will listen when I say — please, take care of yourselves. Be out, be healthy, and get covered."

    Sarah McBride is the Special Assistant for LGBT Progress at the Center for American Progress and authored this blog post on behalf of Andrew Cray. Andrew Cray was a policy analyst at the Center for American Progress. He was her husband and colleague.

  • Promoting Libraries for Affordable Care Act Outreach

    Jamie Markus

    Jamie Markus is being honored as an Affordable Care Act Champion of Change.

    As the Library Development Manager at the Wyoming State Library, I spend my time creating and coordinating programs that enhance library services offered to our state’s 580,000 residents. The Library Development Office staff manages, promotes, and supports many exciting statewide library projects.

    In July 2013, the Institute of Museum and Library Services, the American Library Association, and other partner organizations launched an e-health initiative, asking all types of libraries to support educational and outreach efforts surrounding the Health Insurance Marketplace.  The Library Development Office at the Wyoming State Library took the lead in coordinating with potential partners in Wyoming. 

    As the project progressed, I realized that libraries would become key partners in the outreach effort due to their status as community centers and trusted sources of information. I met and talked with as many organizations as I could find to discuss how Wyoming’s libraries could help to support the efforts of Healthcare Navigators and those working to inform residents about the Affordable Care Act, the Health Insurance Marketplace, and the HealthCare.gov website.

    The Wyoming State Library designed and supplied 15,000 Health Insurance Marketplace handouts to Wyoming libraries, including twenty-three public libraries, seven community college libraries, a tribal college library, and the University of Wyoming libraries. More than 90 library outlets in nearly every major community in the state had the opportunity to provide these handouts to library patrons. 

    I participated in an untold number of meetings, teleconferences, webinars, and email exchanges to promote the idea of using library public meeting spaces and public access computers to those groups involved in educational events and insurance sign-up workshops on the Affordable Care Act and Health Insurance Marketplace. I also coordinated the production of two state-wide webinars and two programs at the 2013 Wyoming Library Association Annual Conference, informing library staff about the Affordable Care Act, the Health Insurance Marketplace, our Wyoming partners, and available resources.

    The demand for information about the Affordable Care Act was high. I was glad to be able to promote libraries as a safe and trusted place for outreach organizations to put residents in touch with the information they wanted and needed.

    Jamie Markus is the Library Development Manager at the Wyoming State Library.

  • Serious Illness Taught Me the Value of Insurance

    Cecelia Smaha

    Cecelia Smaha is being honored as an Affordable Care Act Champion of Change.

    I don’t remember driving home from work with the Georgia Department of Labor on November 19, 1999. I had flu-like symptoms and felt awful that day. My housemate was so alarmed when I arrived home that she tried to get me to call an ambulance. I refused because my insurance would not pay for the ambulance if the hospital didn’t admit me. I didn’t think I was that sick, and I couldn’t afford to pay the ambulance fee.

    Blessed by God to have such a caring housemate, I made it through the weekend. But on Monday, I ended up in the hospital in a coma and was placed in the acute intensive care unit. Three weeks later, I awoke from the coma to learn that I’d had a severe E. coli bacterial infection and was lucky to be alive.

    I was in the hospital for seven weeks, but I also had a long period of recuperation to follow that hospital stay. I never gave any thought to the cost of my hospital stay until I got the bill from the hospital. I couldn’t fathom paying almost a quarter of a million dollars! And that bill didn’t even include any of the doctors’ bills nor the aftercare with home nurses. I didn’t have that kind of money. The only thing I owned was my car.

    I was advised not to pay anything until I checked with my insurance company. As it turned out, my insurance paid for everything. Because of residual effects from this illness, I still have medical complications, but my insurance continues to pay. This was a lesson of a lifetime: Everyone needs insurance.

    On December 12, 2001, I was privileged to become an associate of the Institute of the Sisters of Mercy of the Americas South Central Community. In this role, I help provide services to people who are less fortunate, including the economically poor and the less well-educated. When the Affordable Care Act passed, I was jubilant. I saw this as an opportunity to put Mercy into action. I jumped at the chance to help spread information about the ACA through Get Covered America in Georgia.

    I gave my time and energy to helping get the word out at churches, on the streets, and by working 10 hours each week for more than two and a half months at our local Kmart. Through a mutual agreement with Kmart and Get Covered America, I was privileged to do an event at our local Kmart, where I set up a table and greeted customers, explaining the Affordable Care Act to local shoppers. Through these opportunities, I helped make contact with over 2,000 Georgians.

    I look forward to working with Get Covered America again this year. I am also spreading the word about my state’s refusal to expand Medicare, and I’m working to ensure its expansion—because nobody should be left without health insurance.

    Cecelia Smaha is an associate of the Institute of the Sisters of Mercy of the Americas South Central Community.

  • Alleviating the Burden of Circumstance

    Peter Yang

    Peter Yang is being honored as an Affordable Care Act Champion of Change.

    I believe that we are all products not only of our choices but also of our circumstances. There is a surprisingly prevalent misconception that people in adverse situations somehow deserve the hardships they face. Working in my community in Georgia, I’ve come to regard that idea as severely misguided; I have met so many hardworking individuals who, despite their best efforts, are trapped in a socioeconomic pit that they cannot dig themselves out of.

    I first became involved in my community as an undergraduate at Emory University, when I saw the incredible impact of volunteerism in the surrounding community. During this time, I met many of the leaders and visionaries of the Asian American community in Georgia. Inspired by these individuals, upon graduation, I moved on to work at the Center for Pan Asian Community Services, where I was tasked with outreach for the Affordable Care Act during the first period of Open Enrollment. Prior to this work, my sole experience with the Affordable Care Act had been learning about its intricacies in a classroom setting. As I learned more about the program and its effect on the communities we serve, I began to see the law as a huge step in the right direction to improve the lives of the individuals that struggled with adverse circumstances.

    Adequate access to health care is an essential part of human society. Some would even argue that it is a human right. Yet, the United States is severely behind the majority of other developed countries in providing that access. Georgia is home to one of the fastest growing populations of immigrants and refugees, and these individuals often lack adequate health insurance coverage. The more I worked with these individuals, the more I saw the human beings whose lives were impacted by the ACA.

    The law has been successful thus far, but we still have more work to do. I am deeply honored to be selected as a Champion of Change but also just as honored that I have had the opportunity to serve these communities by promoting the Affordable Care Act.

    Peter Yang is the Affordable Care Act Program Coordinator at the Center for Pan Asian Community Services.

  • Changing Lives of Working Americans in Communities of Color

    Joshua Gray

    Joshua Gray is being honored as an Affordable Care Act Champion of Change.

    Last fall, members of the Service Employees International Union (SEIU) reached out to friends, neighbors, and loved ones with the great news that the Affordable Care Act levels the playing field and gives them a fair shot at a longer, healthier life.

    Thanks to the work of SEIU members and community partners, millions of working women and men – particularly in communities of color – are now waking up to a world in which there is no need to put off a doctor visit or skip medications. There is far less worry about mounting medical bills or missing work and subsequent paychecks.

    Every day, I am honored to work with SEIU nurses, doctors, home care workers, and other union members to promote access to quality, affordable healthcare in African American, Hispanic, and Latino communities. I also build community partnerships that help close health equity gaps. But it is really the faces and lives of those who are touched that motivate me. I’ll never forget Ms. Thomas, a mother I met last February at an enrollment event in Philadelphia. I was able to help identify resources and walk her through the steps so that she could get her daughter covered. I didn’t think I’d ever hear from her again until she called to thank me two months later. Her daughter finally had healthcare.

    This type of outreach is especially critical in reaching Latinos and African Americans, who are much more likely to be uninsured than the rest of the population and suffer worse healthcare outcomes as a result. That is simply unacceptable, and we must continue our fight to move our country’s healthcare forward. We won’t stop until we deliver quality, affordable healthcare to all working people, giving families a path out of poverty.


    Joshua Gray is the Special Assistant to the Chair of the SEIU Healthcare Division.