Champions of Change Blog

You Too Can Make a Difference

Posted by Pat Halpin Murphy on October 27, 2014 at 9:35 AM EST

Pat Halpin-Murphy is being honored as an Affordable Care Act Champion of Change.

I am truly grateful to have been selected as a White House Champion of Change. I can’t tell you how much it means to me to be honored with this award.

As the President and Founder of the Pennsylvania Breast Cancer Coalition (PBCC), I lead a non-profit organization dedicated to finding a cure for breast cancer now so that our daughters won’t have to. I’m a breast cancer survivor, and twenty-five years ago when I was diagnosed I found that there wasn’t an organization in Pennsylvania dedicated to supporting women and families facing breast cancer. I founded the PBCC in 1993 to fill this void. In our twenty-year history, the PBCC has paved the way for countless legislative victories that support women and families across the state.

The best part of my work is talking to women about their experience with breast cancer and finding out what we can do to help meet their needs. For instance, we learned that many women were diagnosed with breast cancer in late stages because they have dense breast tissue. Upon learning this, we didn’t just sit by and wait for something to be done. Rather, we sprang into action and convinced Pennsylvania State Senator Bob Mensch to introduce legislation to help women with dense breast tissue receive improved information and screening so that they could be diagnosed at an earlier stage.

I believe that we all have the capacity to make a difference in our communities. Former U.S. Senator Harris Wofford made a tremendous impression on me as a leader. He recognized that each person has so much to contribute if only given the opportunity. He listened to people’s ideas and encouraged them to make those ideas become realities. Senator Wofford believed that everyone could contribute to their community. I truly believe that we can all make a difference. That’s the best part of this work. I’ve come to realize that, by simply standing up and taking action, we can all be “Champions of Change.”

Pat Halpin-Murphy is the President and Founder of the PA Breast Cancer Coalition.

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Serious Illness Taught Me the Value of Insurance

Posted by Cecelia Smaha on October 27, 2014 at 9:35 AM EST

Cecelia Smaha is being honored as an Affordable Care Act Champion of Change.

I don’t remember driving home from work with the Georgia Department of Labor on November 19, 1999. I had flu-like symptoms and felt awful that day. My housemate was so alarmed when I arrived home that she tried to get me to call an ambulance. I refused because my insurance would not pay for the ambulance if the hospital didn’t admit me. I didn’t think I was that sick, and I couldn’t afford to pay the ambulance fee.

Blessed by God to have such a caring housemate, I made it through the weekend. But on Monday, I ended up in the hospital in a coma and was placed in the acute intensive care unit. Three weeks later, I awoke from the coma to learn that I’d had a severe E. coli bacterial infection and was lucky to be alive.

I was in the hospital for seven weeks, but I also had a long period of recuperation to follow that hospital stay. I never gave any thought to the cost of my hospital stay until I got the bill from the hospital. I couldn’t fathom paying almost a quarter of a million dollars! And that bill didn’t even include any of the doctors’ bills nor the aftercare with home nurses. I didn’t have that kind of money. The only thing I owned was my car.

I was advised not to pay anything until I checked with my insurance company. As it turned out, my insurance paid for everything. Because of residual effects from this illness, I still have medical complications, but my insurance continues to pay. This was a lesson of a lifetime: Everyone needs insurance.

On December 12, 2001, I was privileged to become an associate of the Institute of the Sisters of Mercy of the Americas South Central Community. In this role, I help provide services to people who are less fortunate, including the economically poor and the less well-educated. When the Affordable Care Act passed, I was jubilant. I saw this as an opportunity to put Mercy into action. I jumped at the chance to help spread information about the ACA through Get Covered America in Georgia.

I gave my time and energy to helping get the word out at churches, on the streets, and by working 10 hours each week for more than two and a half months at our local Kmart. Through a mutual agreement with Kmart and Get Covered America, I was privileged to do an event at our local Kmart, where I set up a table and greeted customers, explaining the Affordable Care Act to local shoppers. Through these opportunities, I helped make contact with over 2,000 Georgians.

I look forward to working with Get Covered America again this year. I am also spreading the word about my state’s refusal to expand Medicare, and I’m working to ensure its expansion—because nobody should be left without health insurance.

Cecelia Smaha is an associate of the Institute of the Sisters of Mercy of the Americas South Central Community.

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Disability Is My Strength

Posted by Jenny Lay-Flurrie on October 20, 2014 at 2:00 PM EST

Jenny Lay-Flurrie is being honored as a Disability Employment Champion of Change.

As a person with a disability who is passionate about enabling others with disabilities, I am humbled and honoured to be a White House Champion of Change.

My journey with disability started early. By the age of 5, my hearing was already declining, a process that would continue over the next 30+ years. As a teenager and even through most of my twenties, I felt that I needed to hide my disability. My hearing loss is now profound, but by asking for the help I need and seeing my disability as a strength, I have been able to make myself – and now my employer – stronger. I am fortunate to work for a company that empowers and enables people to be successful. I wake up excited every morning, eager to get to work. I’m lucky to be in a position to make a difference, and this fact drives me to do more every day.

I am a Senior Director at Microsoft, leading the Trusted Experience Team (TExT), which focuses on privacy, online safety, and accessibility. Our goal is to provide a positive experience for all customers. As with any great journey, mine started by taking big terrifying steps. The first was to identify to Microsoft as a person with a disability. I joined the deaf ‘huddle’ group at Microsoft and went on to create and lead the DisAbility Employee Resource Group (ERG), a community of amazing people with disabilities, advocates, colleagues, and parents who share best practices and elevate understanding. At our first annual ‘Ability Summit’ four years ago, 80 people showed up. This past spring, 800 people came to Redmond headquarters to spend the day, which featured our CEO Satya Nadella, Washington Governor Jay Inslee, and many others. The theme of the summit was “Imagine, Build, Enable,” and we have taken that to heart at Microsoft.

In 2012, we announced the Disability Answer Desk (DAD), providing specialized support for customers with disabilities. Today, DAD helps about 4,000 customers a month do more with Microsoft products and services. The team is made up of talented people both with and without disabilities. In addition, I work with the Washington State Disability Taskforce, a public-private group focused on driving representation of people with disabilities in state government to at least 5%. Lastly, I sit on the US Business Leadership Network (USBLN) board of directors, which works towards disability inclusion in the workplace. It’s more “than just doing the right thing;” it’s about enabling people to be successful and achieve their dreams. It’s about changing lives, just as mine was changed.

At Microsoft, we are imagining and building technology for people with disabilities. During our company-wide ‘Hackathon’, we had projects focused on improving technology for people with deafness, blindness, autism, and more. Out of nearly three thousand submitted “hacks,” six of these projects placed in the top 100. I’m most proud of our work with former NFL player Steve Gleason, who is living with ALS, to help create prototype technology to independently move a wheelchair via eye tracking. This work won the 2014 Microsoft Hackathon Grand Prize!

My disability motivates me to strive for a higher bar—a new level of independence and empowerment. It helps me to understand and have empathy for our customers. I work to drive this understanding into Microsoft to create better products. So go on, if you want to know more about your customers, take that step and hire a person with a disability. They’ll teach you all you need to know.

Jenny Lay-Flurrie is a Senior Director at Microsoft, leading the Trusted Experience Team (TExT).
Inclusion Is Imperative in Today’s World

Posted by Angela Mackey on October 20, 2014 at 2:00 PM EST

Angela Mackey is being honored as a Disability Employment Champion of Change.

As an individual with a disability, I know all too well the barriers that those in this segment of our society face. Historically, opportunity and disability seldom go hand-in-hand. I grew up with a grandfather who also had a disability, and I learned that others sometimes used his disability as a reason for exclusion from privileges such as education, a meaningful career, and social acceptance. Being around him as a child, I knew the barriers I would also one day face. The conversations growing up between myself and my grandfather were motivational exchanges, in which he listened to me recite my goals for the future and, in response, offered words of encouragement regarding them coming to fruition. I often wonder what my fate might have been without those interactions.

I was fortunate. At an early age, I understood that through my own determination, hard work, and God, I could be more than just a person with a disability. I also knew that with an education, and eventually a career, I would have a voice. Without a job, I knew that it would be extremely difficult for me to feel like I was in control. In my mind, work equated to personal power. Work, in a lot of ways, leveled the playing field. I might not have the ability to run a mile or score a homerun, but I could operate a computer system with the best of them.

This ideology is why I believe inclusion is so imperative in today’s world of work. I often tell those I train that I am just as capable as someone without a disability, but until I am provided an opportunity to show what I can do, nobody believes it. Luckily, I have had two organizations, South Carolina Vocational Rehabilitation and Walgreens, to open their doors to me to show what I can do, and in doing so, I have assisted others in doing the same. Inclusion does not mean that we want an easier job or a different set of standards. We just want a chance to enter the door like anyone else.

Angela Mackey is a Human Resources Generalist at the Walgreens Distribution Center in Pendergrass, Georgia.
Innovative Opportunities for Entrepreneurship

Posted by Dan Hromas on October 20, 2014 at 2:00 PM EST

Dan Hromas is being honored as a Disability Employment Champion of Change.

I am the owner and operator of Prairie Pride Poultry, a small pastured chicken operation located on the northeast edge of York, Nebraska. I started the farm in 2013 in order to support the growing local food movement by providing healthy, farm fresh eggs to area consumers.

At the farm, we pride ourselves on the humane treatment of the flock of heritage Rhode Island Red chickens. The farm’s standards and practices are conducive to a happy and healthy flock. Coops are moved around the acreage, each one having plenty of floor area, roosting space, and nesting boxes. The flock’s pasture diet is supplemented with feed that does not contain any chemicals, hormones, antibiotics, or animal byproducts; the feed comes from only 14 miles away from a cooperative that has recently achieved HACCP Certification, the highest level of accreditation for food safety in the United States.

In addition to providing the local community with farm fresh eggs, Prairie Pride Poultry also assists in educating consumers and potential farmers about the “Incredible Edible Egg” by sharing interesting facts and information about the widely used and versatile protein source, as well as fostering an environment whereby everyone can feel welcomed at and connected to the farm. I’ve engaged local communities through the York Chamber of Commerce, establishing a great working relationship with Grand Central Grocery in York and participating in the Center for Rural Affairs’ “Farm to School” initiative by selling eggs to York Public Schools, setting up at local farmer’s markets, and raising awareness about importance of a healthy diet that can include eggs.

Before working on the farm, I served in the U.S. military in Iraq. I have also served as a Captain in the Nebraska Army National Guard as a Transportation Corps Officer. I am fortunate enough to have had my hard work receive national recognition through the Farmer’s Veteran Coalition’s national marketing campaign, “Homegrown by Heroes.” I have utilized services from the Nebraska Sustainable Agriculture Society, Center for Rural Affairs, and the Farmer Veteran Coalition as a platform for outreach to other fellow disabled military veterans so that they know a future exists for them in the field of agriculture.

I am honored to receive this Champions of Change award. I hope that other veterans with disabilities will similarly find their own entrepreneurship opportunities, gaining meaningful employment and contributing to their local communities.

Dan Hromas is the owner and founder of Prairie Pride Poultry, a pasture-raised egg business in York, Nebraska.
It’s the Economy!

Posted by John Robinson on October 20, 2014 at 2:00 PM EST

John Robinson is being honored as a Disability Employment Champion of Change.

Did you know that individuals with disabilities have $2.7 trillion in annual disposable income in the United States? Did you know that the unemployment rate for individuals with disabilities is 12.3%, as compared to 5.5% for able-bodied citizens? Now imagine what the disposable income would be in the United States the unemployment rates of those two groups was the same.

It's the economy! We live in an economy that is built upon growth. Yet, we are seeing the baby boomers leaving the workforce. We see an increased population of individuals with disabilities in aging citizens, soldiers coming back from service injured, and individuals with developmental disabilities. We as a society need to be able to filling positions with individuals with disabilities. If our economy is to grow, this population must be utilized.

Twenty-five years ago, at the beginning of the Americans with Disabilities Act, I had just graduated from Syracuse University with a degree in television, radio, and film management. Many of my peers received job offers around the United States, while I moved back in with my parents and cleaned swimming pools to make ends meet. I had strong grades, had a successful internship in Boston, and was well prepared for an entry-level position. Unfortunately, society was not ready for a quadruple amputee looking for gainful employment in media. It took me four years before I was offered an entry-level position inside a television station.

Twenty-five years later, I am proud to have had a long career inside the television industry. I am equally proud of my advocacy work on behalf of individuals with disabilities. At Our Ability, we are working inside American companies to facilitate employment opportunities for individuals with disabilities. We are using our communications experience to help facilitate internal messaging. We are building disability etiquette training seminars inside companies. We are building an online portal for individuals with disabilities to be able to upload their skill set—Our Ability Connect. As the founder of Our Ability, I am very purposely building the foundation that I and so many others needed 25 years ago.

I know we are on the right path. With the changing regulations for federal contractors and subcontractors, there is now an increased interest from businesses to find out more about including people with disabilities in their workforce. I can see it in the seminars I give to human resource managers, who pick up the pens and take notes especially when I talk about disability etiquette and sensitivity. There is an increased awareness about communicating effectively with people who are deaf and visually impaired. This expanded understanding of how to communicate with coworkers is vital to a successful inclusive organization.

While it seems like an impossible goal to level the unemployment statistics between individuals with disabilities and able-bodied citizens, it is something we all need to work towards. Our global economy is built upon growth, and by including individuals with disabilities in the next 25 years we can increase that $2.7 trillion annual disposable income.

Why are the statistics so important? Employment is only one portion of the total self-worth of the individual, but it is quite possibly the most important. We all identify ourselves by where we work. It's one of the first things we mentioned when we introduced ourselves to someone new. We all understand how inferior we feel when we are unemployed or underemployed. This is especially true with someone with a disability. By opening opportunities for inclusive hiring inside major companies, we are not only affecting our economy but are also building the next generation of confident individuals. We as a society are truly becoming inclusive.

John Robinson is Managing Partner and CEO of Our Ability, a company owned and operated by people with disabilities for people with disabilities.